CFDB - Cystic Fibrosis DataBase

Cochrane Database of Systematic Reviews - Cochrane Review

Psychological interventions for individuals with cystic fibrosis and their families

Study design (if review, criteria of inclusion for studies)

non‐randomised studies of pwCF (any age) with or without NTM lung infection or disease being considered for LTx as well as studies of pwCF and NTM who either did or did not undergo LTx.

Participants

pwCF (any age) with or without NTM lung infection or disease being considered for LTx

Interventions

NTM lung infection or disease; lung transplantation

Outcome measures

Critical outcomes were mortality, disseminated NTM infection post‐LTx, time to chronic lung allograft dysfunction (CLAD), and quality of life at any time points reported; lung function, hospitalisations for pulmonary exacerbations, and nutritional parameters

Main results

We analysed all NTM infections together for practical reasons and were not able to undertake a planned subgroup analysis by subspecies, but acknowledge that the prognosis and clinical trajectory of pwCF infected with different NTM may not be similar. We downgraded the certainty of the evidence due to non‐randomised study design and serious risk of bias across all studies. We assessed all identified evidence as of very low certainty, such that lung transplant may have little to no effect on any of the outcomes listed below, but the evidence is very uncertain. Mortality Two studies (18 participants with NTM) reported similar survival data between NTM‐positive LTx recipients and matched controls without NTM. Another study (9 participants) reported that two of five participants NTM‐positive at LTx died within a few months post‐LTx, whilst one of four NTM‐negative participants died three years post‐LTx due to chronic rejection. One study (177 participants) found that pwCF who had positive NTM cultures pre‐LTx had a longer median survival duration than those who had negative cultures. This study additionally reported on survival of participants with post‐LTx NTM infection, finding that the five participants who had post‐LTx NTM disease had a longer mean survival duration than the 141 participants without post‐LTx NTM disease. Disseminated NTM infection post‐LTx In the largest study, of the 18 pwCF with NTM at the time of LTx, seven had at least one positive NTM culture, and four developed NTM disease post‐LTx. Conversely, 79 of the 89 pwCF without NTM remained so post‐LTx; 10 participants recorded a positive NTM culture, but none developed NTM disease. For the 39 participants without a baseline NTM culture, three participants recorded positive NTM cultures post‐LTx, and one developed NTM disease. Of the remaining small studies, one reported that NTM was isolated in four of 13 participants at LTx and in three of these post‐LTx. A second study reported that one out of five pwCF had NTM infection post‐LTx (all were positive at LTx). The third study reported that five out of nine participants had NTM disease at LTx, and two of these five remained NTM‐positive post‐LTx. CLAD Two studies assessed CLAD. One study reported that none of the five NTM‐positive LTx recipients developed CLAD, stating that the risk of CLAD appeared to be similar between the NTM and the comparator group. The second study stated that three out of nine LTx recipients with NTM disease developed chronic rejection or graft dysfunction.

Authors' conclusions

There are no randomised trials to guide clinicians and patients or their families when making decisions regarding LTx in pwCF with NTM. The available data come from observational studies and registry data, often with few people with NTM reported. It has not been possible to pool the available data in meta‐analysis, and we are very uncertain of the effect of NTM on pwCF undergoing LTx on the risk of developing NTM disease post‐LTx, survival after LTx, and the development of CLAD. The studies were small and at times contradictory. In the era of highly effective modulator treatments, as some centres do not offer LTx to people with a history of NTM, there is an urgent need for more data to guide decision‐making.

Related topics

Keywords: Adult; Aged; Bacterial Infections; Infection; Mycobacteriosis; pharmacological_intervention; Respiratory Tract Diseases; Respiratory Tract Infections; Anti-Bacterial Agents; Lung Transplantation; non pharmacological intervention - surg; Respiratory Insufficiency; transplantation;