CFDB - Cystic Fibrosis DataBase

primary studies published, non RCT

The inhaled bronchodilators ipratropium bromide and metaproterenol in adults with CF.

Study design (if review, criteria of inclusion for studies)

longitudinal study

Participants

false-positive CF screening parents

Interventions

detailed questionnaire

Outcome measures

parents knowledge of CF NBS program

Main results

Five aspects of parental response to a false-positive CF screening test are addressed: (1) parents' knowledge of the Wisconsin neonatal screening program and the CF screening test, (2) parents' understanding about test results, (3) the effects of screening-related anxiety upon parents' feelings, (4) the effects of false-positive screening results upon reproductive plans, and (5) parents' attitudes about the delayed disclosure of test results in the control group.

Keywords: Child; Neonatal Screening; non pharmacological intervention - diagn; non pharmacological intervention - psyco-soc-edu-org; Psychoeducation; screening; diagnostic procedures;